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Becker Muscular Dystrophy Information Exchange
Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease. (infos)DMD Options
Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy. (infos)
National Registry of Myotonic Dystrophy and FSHD Patients and Family Members
Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information. (infos)
MDA Ride For Life
Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May. (infos)
Living For Today, Preparing For Tomorrow
Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories. (infos)
Duchennes
Provides links to medical and non-medical organizations and people with Duchennes problems. (infos)
A Guide for Parents
This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living. (infos)
General Practice Notebook - Duchenne muscular dystrophy
Clinically-oriented information. (infos)
DoctorBach.com
This site highlights the work of Dr. John R. Bach and provides information about Non-Invasive Ventilation (NIV) and pulmonary care. (infos)
Muscular Dystrophy Campaign
Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK. (infos)