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Parental Advise on Coping with Chronic Illness of your Child
Tips how to explain, deal with emotions, use discipline, keep a family routine, and cope with strangers. (infos)Starbright Foundation
Features empowerment programs for seriously ill children. Includes chatrooms, videos, comic books, and cd-roms. (infos)
Teenagers and Coping with Chronic Illness
Tips and strategies for parents with newly diagnosed teenagers. (infos)
Promoting Resilience in Youth with Chronic Conditions and their Parents
Paper on family centered care, describes impact, principles, assessment, healthy family functioning. (infos)
Chronic Illness: New and Old Ideas to Care for Children
Slide show by National Center of Medical Home Initiatives for Children with Special Needs explains two new options: Chronic Care Model and Medical Home Project. (infos)
Adolescents Psychological Complications of Chronic Illness
Information from The Child Health Library of Children's Hospital of Pittsburgh. (infos)
What is a Chronic Illness?
Explains to children what their ill friend or relative experiences and what they can do themselves. (infos)
Pain and Chronic Illness in Children
Short paper on the importance of pain management. (infos)
Children and Grief
Discusses how children handle grief and loss and which signs indicate they have difficulty coping (AACAP Facts For Families). (infos)
Shared Vision
Complete article (also as PDF) on longterm needs, financial and medical planning. (infos)